•   4002 Main St, Erie, PA 16511
  •   166 Lake St, Hamburg, NY 14075

What is Childhood Alzheimer’s?

Sanfilippo Syndrome or Childhood Alzheimer’s is a progressive and fatal disease affecting 1 in 70,000 children. It is a genetic condition that affects the metabolism of complex molecules and results in severe damage to the entire body, but most significantly to the brain. Children go on to experience progressive dementia similar to Alzheimer’s, stealing away their skills and knowledge, until they pass away, often in their teenage years.

The story of Liv is best told by visiting the Facebook page her mom Becky created. https://www.facebook.com/cureMPS/

This is how the Bauer family of companies was connected with Liv’s story and chosen to be recipient for our March donation. A small way for us to help raise awareness of Sanfilippo Syndrome.

Our companies began in the fall of last year to make a donation to a charity or group who is making a difference each month.  The request for causes was shared with our installation crews at our annual safety training day and Liv’s story was shared by Jason and Shanny Kuzma.  Shanny did a photo shoot for the Jordan family and learned of Liv’s fight at just 3 years old.  A missing enzyme causes the build-up of cellular waste which causes progressive dementia, extreme behavior and sleep disturbances, seizures, and early death in the teen years.  Families are in a race against time.

When we learned of Liv and Childhood Alzheimer’s, it was right before her family was moving to Oakland, CA to be part of a clinical trial in an attempt to stop the progression of the disease.  We weren’t sure if they needed help for the move or which way to assist.  When we contacted the Jordan’s they said please send our companies’ donation to the Cure Sanfilippo Foundation because they have paired up with this Foundation to continue to raise funds for additional research, for treatments, and one day a cure for this terrible disease.

Cure Sanfilippo Foundation

Please visit the Cure Sanfilippo Foundation’s page to learn more and help raise awareness.  https://curesff.org/

This video about Eliza O’Neill will help gain a bit of understanding what families whose children have a form of MPS diseases like Sanfilippo Syndrome.
The Bauer family of companies will be making a donation to the Sanfilippo Foundation.  We ask for your help to pass this along with shares, likes or reviews so people will learn what MPS diseases are. Awareness and connections made may be the key to a family getting the help they need.  Please pass along.  Thank you.
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Installers were very good
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A few more projects to be done. Part one-excellent.
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Very professional
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Very friendly and professional
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They did a good job and the gutters look great. I have only 2 complaints. I did not receive a call to schedule the in...
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Courteous, craftsman-like, professional. On time, on budget, as promised.
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Excellent workmanship
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Friendly professional installers, good value for the money
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VERY nice and too care of other minor problems I asked for.
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Kevin was great but not everyone there is as customer friendly as he is.
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Bauer Specialty is the best! The office called me immediately to set up an appointment for an evaluation and a quote....
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Bob was very knowledgeable and explained the types of insulation so that I could choose correctly
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We hired this company for roof repairing and they did an exceptional job. These guys worked very hard and finished ti...
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From the salesperson to the installers, I've been very pleased with the entire process. Any questions I had were answ...
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I want to give a huge shout out to Bauer Specialty for a job well done. They sprayed foam in our attic area of our ho...
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The person who came and gave the estimate was helpful, not pushy and answered all my questions and the job was done v...
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Very professional and skilled. They take pride in the work and it shows. They do a great job of cleaning up after the...
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Fantastic customer service! Excellent work performed! They took out the old insulation and spray foamed the basement ...
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